Weblogsky: Jon Lebkowsky's Weblog » e-patients http://weblogsky.com Culture | Community | Networks | Media | Technology Sat, 13 Mar 2010 13:46:10 +0000 http://wordpress.org/?v=2.8.6 en hourly 1 Data glitches: how to get right with your customer http://weblogsky.com/2009/09/26/how-to-get-right-with-your-customer/ http://weblogsky.com/2009/09/26/how-to-get-right-with-your-customer/#comments Sat, 26 Sep 2009 18:32:12 +0000 jonl http://weblogsky.com/2009/09/26/how-to-get-right-with-your-customer/ My friend and colleague e-Patient Dave deBronkart explains how misinformation from a customer service agent for Verizon led to a massive international data charge on his mobile phone bill. Verizon was stellar in their handling of the problem. Key point: they didn’t try to make him wrong or make it his problem.

I won’t try to paraphrase his post – it’s pretty rich. Read it here. He explains Verizon’s checks and balances for mitigating the problem, what he did as an empowered/engaged/activated consumer, and what the implications are for empowered patients and people dedicated to improving healthcare, where data issues are common and a big deal.

]]> http://weblogsky.com/2009/09/26/how-to-get-right-with-your-customer/feed/ 0 Kevin Kelly on Participatory Medicine http://weblogsky.com/2009/06/11/kk-on-the-journal-of-participatory-medicine/ http://weblogsky.com/2009/06/11/kk-on-the-journal-of-participatory-medicine/#comments Fri, 12 Jun 2009 01:18:30 +0000 jonl http://weblogsky.com/2009/06/11/kk-on-the-journal-of-participatory-medicine/ I’m part of the Society for Participatory Medicine, and we’ll soon be publishing the Journal of Participatory Medicine. (We already have a very active blog at e-patients.net.) Kevin Kelly posted a nice summary of our intentions at The Quantified Self:
The newest channel in this effort is the launch of a peer-reviewed science journal dedicated to research in the field of “participatory medicine” — as in patient participant. (Sometimes labeled Health 2.0) There is a great overlap with self-tracking and the quantified self (although by no means is all self-tracking health related), so I think this new journal will appeal to self-trackers and self-trackers to the patient-participant field.

This journal, called sensibly enough, the Journal of Participatory Medicine, will use an open source model (no fee to get the articles) which is both very much in the spirit of the paradigm, but also very future-proof (free is where all journals are headed).

]]> http://weblogsky.com/2009/06/11/kk-on-the-journal-of-participatory-medicine/feed/ 0 More on personal health records http://weblogsky.com/2009/04/13/more-on-personal-health-records/ http://weblogsky.com/2009/04/13/more-on-personal-health-records/#comments Mon, 13 Apr 2009 12:16:44 +0000 jonl http://weblogsky.com/2009/04/13/mor-on-personal-health-records/ My friend and colleague Dave deBronkart, aka “e-patient Dave,” was interviewed by the Boston Globe about his experience setting up personal health records at Google Health, which I blogged about last week. The gist is that Dave is an early adopter using a very new kind of system. Most hospitals don’t even have sophisticated digital records-keeping systems. The Google Health folks say “the records will improve as more precise coding language is adopted in the coming years.” Meanwhile e-patients like Dave will be pushing for better access to better information.

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