In a retreat today and tomorrow with founders of a participatory medicine movement at Cook’s Branch near Houston. In participatory medicine, the patient comes first, and is part of a team that also includes patient groups and communities, healthcare providers, and clinical researchers (paraphrasing the Wikipedia article, which has much more on the subject):
Participatory medicine is a phenomenon similar to citizen/network journalism where everyone, including the professionals and their target audiences, works in partnership to produce accurate, in-depth & current information items. It is not about patients or amateurs vs. professionals. Participatory medicine is, like all contemporary knowledge-building activities, a collaborative venture. Medical knowledge is a network.
